Living with EDS – You’re Not Alone

Woman stretching with Ehlers-Danlos Syndrome

🌿 What Is Ehlers-Danlos Syndrome?

Ehlers-Danlos Syndrome (EDS) is a group of inherited disorders that affect the body’s connective tissues — the "glue" that supports your skin, joints, blood vessels, and organs. While rare overall, hypermobile EDS (hEDS) is the most common form and is often underdiagnosed.

Many people with EDS live for years — or decades — without an official diagnosis, often being told their symptoms are “all in their head.” But we’re here to say: you’re not imagining it. And you’re not alone.

💢 Common Symptoms of EDS

• Joint hypermobility (joints that move too far)

• Frequent joint dislocations or subluxations

• Chronic fatigue and pain

• Stretchy or fragile skin

• Digestive issues (IBS, bloating, gastroparesis)

• Dizziness, anxiety, or POTS-like symptoms

• Slow wound healing and easy bruising

While every person’s experience is unique, many EDS patients share one thing: a long and frustrating road to being believed.

🧬 Famous People with EDS – Raising Awareness

More people are beginning to share their EDS journeys publicly.Here are just a few:

• Jameela Jamil, actress and activist, has hEDS and speaks openly about her joint issues and chronic pain.

• Sia, the singer-songwriter, revealed her struggle with EDS and neurological pain.

• Multiple chronic illness influencers on TikTok and YouTube raise daily awareness about living with EDS and other "invisible" illnesses.

Their stories help reduce the stigma and show that EDS does not define your worth, your strength, or your future.

Person receiving acupuncture for EDS

🪡 How Acupuncture and TCM Can Help

While EDS has no cure, acupuncture and Traditional Chinese Medicine (TCM) can be powerful allies in your care plan:

• Reduce chronic pain & inflammation

• Support digestion and gut motility

• Regulate the nervous system (great for anxiety & POTS)

• Improve tissue healing and resilience

• Address fatigue, sleep, and immune regulation

At JazHands Massage and Acupuncture, we work with EDS patients to build customized plans that honor their unique bodies, sensitivities, and goals.

We offer gentle acupuncture, herbal support, nutrition guidance, and collaborate with your broader care team when needed.

🧘‍♀️ You Are Not Alone

EDS can feel isolating, especially when others don’t understand what you’re going through. But you are not alone — not in your symptoms, not in your story, and not in your healing journey.

If you're living with EDS or think you might be, schedule a free 15min consultation today.We’re here to listen, believe you, and support you holistically.

📍 San Diego Herbal Medicine & Acupuncture

🔗 Book Online | 📞 (619-501-7626) | 📧 (jaz@sdherbalmedicine.com)🌐 [www.jazhandsmassageandacu.com]